The MLD Foundation has undertaken a project to try to identify as many current and past sufferers from MLD as possible. We are collecting as much data as we can, and with your permission, we will share de-identified data with researchers and the MLD Family at large. We will never share personal information with researchers or others without your permission.

Over time, we will refine the questions asked and will provide you with addiitonal opportunities to share limited portions of your MLD Family Profile (age, contact information, etc.) with other registered MLD Family members.

We appreciate your support and encourage you to check back to continue to add to your MLD Family profile and the understanding that we have of MLD.

Please click here to continue.